The following question is posted οn the Dutch website of Usher Syndrome (www.ushersyndroom.nl): “Would you choose for being deaf or blind? I cannot choose, for I am becoming both my deaf and blind because of the Usher syndrome.”
What is Usher Syndrome?
The Usher syndrome is a genetic disorder which contributes to partial or total loss of hearing and vision and can also affect balance. The Usher Syndrome is classified as either Type I (deaf from birth, speech difficulties, problems with balance, vision loss in the first 10 years of life ), Type II (partial hearing loss, gradual loss of vision) or Type III (gradual deterioration in hearing, vision and balance). (For more information look on: http://www.noesi.gr/book/syndrome/usher).
It is nowadays estimated that about 10% of children that are born deaf may be due to the Usher Syndrome. There is currently no treatment for Usher syndrome but there have been significant scientific developments that can lead to a cure for this rare genetic disorder in the last years. Alongside this effort to find a treatment, there are also efforts being made to create better daily life conditions for people with sight, hearing and balance disabilities, in order for them to be able to live independently and with dignity for the greatest part of their lives.Read More »
Ms Psyche Blog 